Childhood Chronic Illness: Enhancing Family Capabilities
PI: Catherine Carr
- Sponsor: Children's Hospital and Regional Medical Center
- Project Period: 9/30/2003 - 9/15/2008
- Current Faculty
- Cristine Trahms - Key Personnel
The overall goal of the application is to develop a unique psycho-educational program that will strengthen parents' abilities to manage the complexities of childhood chronic illness. To achieve this goal, our team of parents, health care professionals, and researchers proposes to develop, implement, and evaluate a Childhood Chronic Illness Family Management Program (the program) based on successful chronic disease self-management models developed at the Stanford University's Center for Education (Lorig) and Packard Children's Hospital (Stenzel and Helmer). The Program will integrate the conceptual model of Shared management in Childhood chronic illness developed by Kieckhefer and Trahms in earlier work. Dr. Kieckhefer will serve as principal investigator and will have overall responsibility for scientific and budgetary oversight. She will work closely with Co-investigator Nanci Villareale, Co-director of the Center for Children with Special Health Care Needs at the CHRMc, on operational and staffing aspects of the study. Ms. Trahms will serve as UW curriculum expert for integrating the Shared Management Model into the overall Program curriculum and will co-lead 4 sessions.